People, myself included, have been trying to figure out what I can and can’t see. There is no constant answer, no definitive statement; it’s a paradox. I’ve come to terms with the mystery that on one day in certain conditions things are great and I can function well visually. On other days… notsomuch.

One of the biggest factors for me on how high functioning I am or not is light. With my eye condition my irises are translucent and let in a ton of light all on their own. Essentially, I can’t control the amount of light entering my eye. Usually the pupil of your eye controls the amount of light that comes into your eye. But in my case the pupil is limited in capability by the holes in my iris.

As an aside; my translucent irises mean I have unusual eye color. My eyes are rainbow with brown green and blue. Its very cool, if I do say so myself!

I do what I can to control the amount of light coming into my eyes by other means. I love hats, and a good Tilley hat is great at helping remove unwanted light. Day-to-day I use either Corning clips – I love them! – or Transitions darkening lenses. These help most of the time.

I have attempted to compile a list of circumstances where light is an impact for me. The impact of light on my vision is profound. In the right circumstances I can be rendered totally blind. Depending on light conditions, my vision can become cloudy, or hazy, or on the other hand, even enhanced. When I am impacted negatively by light, it generally results in a very nasty migraine headache.

I will be totally blinded if the lighting conditions are:

– Direct sunlight in my eyes
– Light sources from above or below or from the sides
– Glare: bright days with clouds
– Reflections from rain or snow or from shiny objects
– Darkness
– Darkness with lights shining in my direction
– Darkness with rain or standing water
– Bright days with snow

I will be partially blinded if the lighting conditions are:

– Fall and Spring are killer as the light is directly in my eyes.
– Reflected light

I function well if the lighting conditions are:

– Clear days
– Dim cloudy days
– At dawn and dusk
– Summer or Winter
– No standing water
– Moon light and snow
– Moon light
– Projected light

As far as I know, and keeping in mind that I have no common point of reference, I see what you see in sharp contrast and in living color. I just lose the detail significantly faster.

Ultimately this is an indirect answer to the question of “what do I see” by applying context via specific lighting conditions.

About the Author:

Kyle has ocular albinism and has been legally blind since birth. Kyle leads a very active live and is besides his professional career involved in many projects for persons who are different.

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