Ocular Albinism
Detached Retina’s
I have Ocular Albinism OA2, I think, part of the package is the retina doesn’t form property. This year we’ve been renovating. Last year paint outside. This year lost of paint and changes inside. I finally have a dedicated studio space, first time ever. As with all things there is a price. When […]
Communication & Imagination
Living with Ocular Albinism I’ve always tried to define the word accommodation? My definition for accommodation recently changed. I’m an Information Technology professional; naturally my definition of accommodation has revolved around technology. Here are the solutions I’ve found to the problems I face with Ocular Albinism. Light Sensitivity My irises are translucent so […]
Driving
Not being able to drive was the most painful thing in my life. For the first time in my life there was no way to pretend to be like everyone else no more illusions. I am legally blind. I was definitely different. It didn’t matter how high functioning I was or wasn’t or how well […]
Downhill Skiing
I love to downhill ski. I grew up in Calgary forty five minutes from Banff and some of the best skiing in the world. I learned to ski in Calgary at PaskaPoo renamed Canada Olympic Park for the 1988 Calgary Winter Olympics. Anyway when I was learning to ski we called it Poo Glacier as […]
Raising Children
Parenting is interesting at the best of times. I’ve learned more about parenting styles since my divorce then I did during my marriage. Do I parent differently because I’m blind? In a word yes. Before I had children I was the biggest opinionated arrogant non parent around. Oh those people don’t know how to parent […]
Support Systems
As the Beach Boys put it, “I Get Around!!”. It’s all about gettin around. If you’re blind, simply put, you need to be the easiest date at the prom. It’s all about logistics. Getting groceries, getting to the doctor, getting the kids, etc. It’s about getting things done. Your support system is everything. Without it […]
I Should Have Known
I connected with a cousin of mine the other day. During the conversation of catching up we touching on my disability. She knew I was blind, but not what that meant or what it was called. I should have known. I’ve spent so much time lately being angry and frustrated at my family of origin […]
Cone of Silence
I’ve talked to a number of people recently and I’m shocked. I have been ignorant and naive. People with any disability, visible or not, disease, affliction whatever feel like they are not allowed to talk about their condition. I’ve been told by many not for profit organizations that their donors demand to be anonymous. The […]
Propagation
My views on parenting have matured recently especially since my children have fired me. Being fired has given me impetus to finally come to terms with some issues what have haunted me There are lot of barriers to being a good parent when your disabled. The logistics you have for managing your disability and children […]
