I Should Have Known

I connected with a cousin of mine the other day. During the conversation of catching up we touching on my disability. She knew I was blind, but not what that meant or what it was called. I should have known. I’ve spent so much time lately being angry and frustrated at my family of origin I hadn’t thought about their level of knowledge concerning the genetic disorder that runs in our family.

I’m sorry.

Here is the introduction to Ocular Albinism the genetic disorder that runs in my family of origin.

The National Organization for Albinism and Hypo-pigmentation “NOAH” does an awesome job about providing information about Albinism and Ocular Albinism. Check out their website at:


The following posting on www.blindmancan.com is very good about talking about Albinism, genetics and eye conditions.

The following posting on www.blindmancan.com describes how the genetic disorder is transmitted in my family of origin.

When you won’t talk about something or don’t talk about something you take the language of the topic away you take away the avenues for learning growing sharing and healing. I pity the relative of mine who is the surprised parent of a disabled baby and doesn’t know anything about it because people won’t talk about it. I pity those in my family that are alone and can’t talk about the disability because its subject forbidden. We’ll I will talk about it. If you have any questions let me know. If I have an answer I’ll share it if I don’t I’ll tell you I don’t know.

About the Author:

Kyle has ocular albinism and has been legally blind since birth. Kyle leads a very active live and is besides his professional career involved in many projects for persons who are different.

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