By June 15, 2013 Read More →

STOP Shaking Your Eye’s

What’s up with your eyes Dude!!!???

Well its a long story. Here is what I understand about my eyes. I have two different sized eyes. So the image I get from one is a different size than the image I get from the other one. I don’t know which one is bigger.
Nystagmus: Scanning of the eyes. Rapid eye movement back and forth. Sometimes folks think your on drugs. My kids tell me that if they stop they are doomed….. Apparently strong emotion will stop the motion.
Strabismus: Misalignment of the eye’s / crossed eyes. I need a prism about four centimeters thick to align the images. My brian does a lot of work to compensate.
Iris transillumination or translucency: My iris is full of holes, no really and I can’t control the amount of light that enters my eye.
Foveal hypoplasia: My retinas didn’t form properly. Incomplete or absent development of the part of the retina that is important for best central vision (e.g., reading)
Reduced pigment in the retinal pigment epithelium: When you look at the back of a “normal” eye its pink. Mine are white. Hence the Albinism.
Photosensitivity: Oh my word!!! Your not kidding. I can’t control the amount of light entering my eye. Overhead lights especially are killer and bright days with clouds or direct sunlight. GIVE ME A HAT!!!
Reduced or absent sterovision: Depth perception is optional. I knew I’d never make the major leagues.
Increased refractive errors: Yes I need glasses correcting near sightedness and astigmatism
Astigmatism: Irregularly shaped cornea.
Reduced Vision: You better believe that. 20/200 corrected I don’t know what my visual acuity is uncorrected. I’ll find out next time. With the tricks I talk about elsewhere and some whicked socialization I appear to function some of the time at 20 /30. Lots of energy and doesn’t last long.
Excessive retinostriate decusssation: I have extra wires. “Normally” each of your eyes has an optic nerve that goes to one side of your brain. For instance your right eye will go to the left side of your brian and your left eye will be wired to the right side of your brian. My eyes go to both sides of my brian.
I think the is the list of things associated with Ocular Albinism and me specifically. Physically my brain and my eyes do a lot of work to compensate for each one of these things. Fatigue is a major barrier in my world. I have to so take care of me or I wouldn’t have the energy to get though my day. There are many times during a day I will be totally blind to conserve visual energy or recover from using too much visual energy. Most days I have a headache from working to see. It really is a lot of work.
Physically I get two different images in size and shape and clarity. Color is more or less the same. My peripheral vision is good on both sides. To see my brian combines these two images into a single “virtual” image. I’ll call it virtual as the image I see mentally is processes so heavily and a lot of the adaptive mental tricks I used are employed.
I’ll write more about fatigue soon. That in a nutshell is the physical equipment I came with from the factory. Meaning what I was born with.

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