Pain

Detached Retina’s

Detached Retina’s

I have Ocular Albinism OA2, I think, part of the package is the retina doesn’t form property. This year we’ve been renovating. Last year paint outside. This year lost of paint and changes inside. I finally have a dedicated studio space, first time ever.     As with all things there is a price. When […]

By November 9, 2015 Read More →
Communication & Imagination

Communication & Imagination

  Living with Ocular Albinism I’ve always tried to define the word accommodation?   My definition for accommodation recently changed.   I’m an Information Technology professional; naturally my definition of accommodation has revolved around technology.   Here are the solutions I’ve found to the problems I face with Ocular Albinism.   Light Sensitivity My irises are translucent so […]

By January 23, 2015 Read More →
Studies In Pain

Studies In Pain

Having experienced pain first hand in my life due to trauma both emotional and physical, I have an observation. It is paradoxical to me that to heal physically and emotionally are two different things. To heal physically you have to manage reduce and attempt to eliminate the pain. The more pain your body has to […]

Going to the Slaughter House

Going to the Slaughter House

In life there are many things we don’t want to do. Would avoid if we could, postpone as long as we can. I’ve added to my blindness a debilitating back problem. In my travels I ripped a hole in one of my disks in my spin. It hurts a lot and two to three times […]

Managing Your Disability

Managing Your Disability

Disability requires constant diligence, what’s working what’s not working, what’s changed, what can I do to manage my disability differently. It’s a discipline of constant diligence that will see you through. None of Us Wants be a Burden We all don’t want to be a burden on others. Having others take care of our basic […]

Living With Pain

Living With Pain

I’m not convinced that there is any “disability” be it sensory, mobility, or cognitive that doesn’t come with some side effects. Accommodating for a disability is very hard on the mind & body. Besides the fact that most disabilities don’t come without some spice, there are generally some other issues associated with the disability. Having […]