Disability & Blindness

Death of Vision

Death of Vision

Grief is a regular thing with disability. When your walking in the middle of the road, just like a grape you will get squished occasionally. Or end up like road kill rodent burgers. Enough morbidity. It is very difficult having “residual” vision. Your capabilities are dynamic and sometimes they change for the worse. I’ve never […]

STOP Shaking Your Eye’s

STOP Shaking Your Eye’s

What’s up with your eyes Dude!!!??? Well its a long story. Here is what I understand about my eyes. I have two different sized eyes. So the image I get from one is a different size than the image I get from the other one. I don’t know which one is bigger. Nystagmus: Scanning of […]

I Can’t See You!!!

I Can’t See You!!!

I am as bad as a two year old. I’m still stuck in the mindset that if I can’t see you you can’t possibly see me. Not true according to my companions. But I really don’t understand what “sighted” people can and cannot see. For me if I can’t see you I must be in […]

Take Care of YOU!!!

Take Care of YOU!!!

My experience with disability has been traumatic. The issues of Rejection Isolation and Self Esteem have been devastating during my lifetime. I have made many wrong decisions and have invested in relationships and pursued careers that have not fed me. Worse these decisions have impacted me greatly as a person. My biggest sin is my […]

Facts About Albimism

Facts About Albimism

      Facts About Albinism Index Questions and Answers: What is Albinism? What is melanin pigment? How does melanin form? What Are the Problems with Albinism? What Eye Problems Result from Albinism What Can be Done for the Eye Problems? What Can be Done to Help Children with Albinism in School? How Much Time […]

How My Ocular Albinism Works

How My Ocular Albinism Works

This is what I know about the form of Ocular Albinism that is present in my family. The gene has travelled through a few family names so I won’t list them here. Also our form of Albinism is odd as the form is common in India but no where else. It appears my family carries […]

I Wish You’d Told Me

I Wish You’d Told Me

I wish you’d shared with me. I’m suffering for your ignorance and pride. Who do you think your kidding not talking about your disability not sharing with others in your family impacted by the same disability you have. Who are you not to admit that you are blind like me. Throughout our lives we are […]

Phoenix

Phoenix

I have learned from the Phoenix my entire life. As soon as I understood the concept of a being that would burn to ashes and be reborn I hung onto the pyridine. At first in the context of my disability then I took the philosophy to my entire life. When I was younger it happened […]

Loss

Loss

I know I’ve talked about grieving and the grieving cycle before, I had a cool conversation with an old friend yesterday who lost a really cool gig. He had a cool title, prestige, power, impact, and respect. He also had life plans and goals that have all now had to be rethought. I know when […]

Eyes Open

Eyes Open

I am stunned trilled happy ecstatic and absolutely amazed. This is the best I’ve seen in over five years. The Strabismus surgery in combination with new glasses has made the world of difference. I would estimate at a quality of seeing improvement in the 40% to 50% range. Significantly reducing my eye strain and pain. […]

Suicide

Suicide

Have you ever thought about killing yourself?   I have.  I was in my teenage years my first significant relationship had just ended, she started seeing someone who could drive.  I was dealing with not being able to drive and struggling with who would want me.  Not only who would want me but who would want […]

White Canes Mean?

White Canes Mean?

I was shopping for groceries today. I needed some help and like I usually do when I need help I ask. The person pointed to the isle and told me if you can’t see it we don’t have it. I told them cool I’m blind but they were already gone. I thought O.K. I live […]

Braille Business Cards

Braille Business Cards

When I’m out and about I often get asked about various bits and bobs of equipment I’m using to accommodate my disability. Or I’m asked about blindness in general. I answer the persons question and point people at the “BlindManCan” blog. I’ve started handing out business cards my wife makes for me, she does a […]

What Does a Blind Person Look Like

What Does a Blind Person Look Like

I am really struggling. People are amazing at least where I’m living currently in Calgary. No one seems to recognize that I am blind. I can honestly tell you what kind of crazy person would choose to walk around with a white cane, or tinted glasses. But thats what they seem to think. They think […]

Methodical

Methodical

Blindness is discipline, No really it is. Its not some kind of weird control or S&M thing. To manage and accommodate myself I need to be very methodical and disciplined about my logistics of life… Orientation is critical for safety and functionality. Once I have my orientation or as I talk about it my context […]

Assulted on Calgary Transit Route 301

Assulted on Calgary Transit Route 301

I live in the very far north part of Calgary, it takes me two buses to get from my home to work in downtown Calgary. The shuttle bus I use is bad enough the Route 420 is served generally only once an hour and the size of the bus used on the route variable on […]

A Culture of One, Identity

A Culture of One, Identity

Recently I published an article defining culture, I want to build on that article as the definition of culture has given me language to discuss identity. I have been drafting an article on identity for as long as this blog has been in existence. All of my life Spock from the “Star Trek” franchise has […]

I’m a Tweener

I’m a Tweener

I’ve always struggled with reading and writing. It wasn’t until the 2nd grade that I actually became proficient reading, and it wasn’t until much later that I realized that I don’t see words by the letters that make them up. I see words by their shape. It was always weird why I had so much […]

Can’t Quit

Can’t Quit

I’m still scared. The economic downturn has been brutal on me personally. My personal portfolio is a disaster and will remain that way for the foreseeable future. I am still haunted by precision fit, where you had to be the best of the best of the best Sir, and be the perfect cultural fit for […]

Prioirty Seating

Prioirty Seating

As you’ve read and heard me bitching and moaning its been hard for me coming back to Canada from the United State, the US is really the world leader in disability awareness. I’ve noticed that my experience personally varies significantly geographically with my more positive experiences happening in Toronto, Edmonton, and Vancouver and my worst […]

Arogant Human Ignorance

Arogant Human Ignorance

A core part of the human experience is; we don’t know what we don’t know. It’s like the young child who covers their eye’s and thinks they are invisible. If something exists beyond our imagination then to us it doesn’t exist. Humans as individuals and humans as a herd don’t like change. An individual can […]

R.I.P.

R.I.P.

    Kyle Bruce Bergum is dead, only figuratively metaphorically, not physically, well not yet anyway. We all talk about it, death, and living. A friend was telling me the other day that we spend the first half of our lives thinking we are immortal and the last half of our lives working to understand […]

I’m Back

I’m Back

Its too long since I’ve last posted, its winter here now, not too cold yet or too much snow, but definitely winter. Christmas and now my birthday have come and gone. Last fall has been fun and a bit of an adventure. I have some short tales and a warning about being careful what you […]

PAIN

PAIN

  I’m not convinced that there is any “disability” be it sensory, mobility, or cognitive that doesn’t come with some side effects. Accommodating for a disability is very hard on the mind & body. Besides the fact that most disabilities don’t come without some spice, there are generally some other issues associated with the disability. […]

When is Enough, Enough?

When is Enough, Enough?

When is enough, enough? Recently, I wrote about my intolerance for intolerance and my new approach of working in the context of three strikes before writing off someone, a group, or an organization, or employer. I recently worked in a health care organization from January this year to early August this year. My tenure should […]

Anything You Can Do, I Can Do Better!!!

Anything You Can Do, I Can Do Better!!!

  I regularly receive the comment, “I didn’t know you were blind!” I am what they call “high functioning”, which has always pissed me off. High functioning is a fancy way of saying I’m not blind, or I’m not blind enough. Lets stick purely with the facts, I am blind; yes I still have some […]

Pics

Pics

    They say a picture is worth a thousand words. On the following pages you’l have access to a large portfolio of photos. On the one had you’ll see me up to all kinds of things getting into all kinds of mischief. On the other hand you’ll see the pictures I’ve taken from places […]

Normal

Normal

None of us like to feel or admit we are different. I look at my choice of careers. I used to shun the musician, masseuse thing as it was stereotypically blind. I now am spending more time singing and want to learn the message trade. I chose a career in information technology “IT”. Why because […]

Disability Defined

Disability Defined

My disability has added a second disability, my back. I have a ruptured disk for whatever reason we, the doctors and I, have no clue what happened. The theory is that a cycling accident I had a number of years ago was the catalyst event. It really doesn’t matter, my back condition is painful, debilitatingly […]

Pace

Pace

It’s a lesson I’ve had to focus on for my whole life, slow down, be patient. I’ve laughed at and mocked statements like you need to slow down to go faster. With age, millage and experience I can now look back and see that indeed if I’d stopped, spent more time learning, more time planning, […]

Managing Your Disability

Managing Your Disability

Disability requires constant diligence, what’s working what’s not working, what’s changed, what can I do to manage my disability differently. It’s a discipline of constant diligence that will see you through. None of Us Wants be a Burden We all don’t want to be a burden on others. Having others take care of our basic […]

Throw Back

Throw Back

Recently I had the opportunity to work at a client who’s focus is the eradication of blindness. I had some misgivings going into the organization, “the blind man at the blind organization”. Initially the gig was a good fit the people were excellent the mission for the organization seemed sound and I had fun for […]

Blind Man Fighting

Blind Man Fighting

To steal a line from Peter Gabriel “I was taught to fight, taught to win”. My parents would tell me when I was growing up that they are raising me differently then they did my sister. They were teaching me to fight for myself. Being disabled is tough it can be a “fight”. Recently as […]

Eureka

Eureka

I finally know why people don’t think I’m blind. I ran into a woman on the street yesterday who just kept looking at me in shock. She said that she had a friend who is blind and she says to me “you’re not blind”. I was raised to appear not blind for 40 years I […]

Prejudice

Prejudice

The remarks, “You are amazing!”, “You are inspiring” are a polite reminder of how brave I am to leave my house. I was on course last week and my eye’s, my mind, my heart was opened to some tragic truths. I am of Metis decent. Thankfully, and I say that with a lack of pride, […]

Least Significant Rights

Least Significant Rights

  I want to introduce a concept to you, least significant rights, is used in computer file system security. A user uses a computer and the computer determines if you have access to a file on the computer by looking at the users access to: the computer disk, the folder on the disk, the sub […]

Beware, Small Minded Person

Beware, Small Minded Person

There are people out there who feel badly about themselves to the point they use others, they hurt others, to feel better about themselves. These are the people in a “culture” who are convinced that greatness cannot come from anywhere but within the culture. They are closed to the potential of others instead they judge, […]

Culture Defined

Culture Defined

I took a course that offered a model of culture that I’ve latched onto. I am a visual thinker and models help me to make sense of things and to move forward my thinking on a subject. I’ve been trying to write about a number of topics for a couple of years and now with […]

Intolerance for Intolerance

Intolerance for Intolerance

I don’t have to look far to recognize the things that infuriate me about intolerance; I just have to look in the mirror. I have a total intolerance for intolerance, and I’ve been brutal about it. Popeye has been an inspiration for most of my life, well a sound byte of Popeye’s has been an […]

Crossing the Street

Crossing the Street

  Crossing the street is serious business. I have a rigor a discipline that keeps me safe and keeps me alive. Sighted people are so carefree so careless, jaywalking, cutting corners, crossing against the signal. I don’t have that luxury, my envelope of certainty isn’t that big. My rule of thumb is never trust a […]

Coke Bottle Bottoms

Coke Bottle Bottoms

  WARNING, this content may be misconstrued by some readers.  The implication being I can see more than I can actually see.    The ability to compose a picture has no relationship to how much of the content of the picture can be seen.     Photography is an important technical accommodation used to give […]