Disability & Blindness

Detached Retina’s

Detached Retina’s

I have Ocular Albinism OA2, I think, part of the package is the retina doesn’t form property. This year we’ve been renovating. Last year paint outside. This year lost of paint and changes inside. I finally have a dedicated studio space, first time ever.     As with all things there is a price. When […]

By November 9, 2015 Read More →
Communication & Imagination

Communication & Imagination

  Living with Ocular Albinism I’ve always tried to define the word accommodation?   My definition for accommodation recently changed.   I’m an Information Technology professional; naturally my definition of accommodation has revolved around technology.   Here are the solutions I’ve found to the problems I face with Ocular Albinism.   Light Sensitivity My irises are translucent so […]

By January 23, 2015 Read More →
Leap of Faith

Leap of Faith

  I’ve always wanted to make my living from my vocal talent.    Seriously I can sing and sing very well.  I’m not an exceptional talent with the ability to write and play another instrument, but I can really sing.     I’ve wanted to for about twenty years record a number of albums.    I sing a number […]

By September 2, 2014 0 Comments Read More →
Support Systems

Support Systems

As the Beach Boys put it, “I Get Around!!”. It’s all about gettin around. If you’re blind, simply put, you need to be the easiest date at the prom. It’s all about logistics. Getting groceries, getting to the doctor, getting the kids, etc. It’s about getting things done. Your support system is everything. Without it […]

Driving

Driving

Not being able to drive was the most painful thing in my life.   For the first time in my life there was no way to pretend to be like everyone else no more illusions.  I am legally blind.   I was definitely different.  It didn’t matter how high functioning I was or wasn’t or how well […]

Coming Out Blind

Coming Out Blind

For most of my life I have not lived openly with my blindness. I have hid it and rejoiced in its invisibility. The sad thing with most things you try to hide about yourself the only person I was fooling was myself….   It takes a lot of energy to appear sighted, you’re constantly acting and anticipating the […]

Downhill Skiing

Downhill Skiing

I love to downhill ski.   I grew up in Calgary forty five minutes from Banff and some of the best skiing in the world.     I learned to ski in Calgary at PaskaPoo renamed Canada Olympic Park for the 1988 Calgary Winter Olympics.   Anyway when I was learning to ski we called it Poo Glacier as […]

Changing a Diaper

Changing a Diaper

Isn’t it a right of passage for a parent to get painted with urine or plastered with poo while changing a diaper? I think all of us parents have at least one story, well maybe two. I’m not convinced that there is any difference being blind and changing diapers. Its a nasty affair at the […]

Support Systems

Support Systems

As the Beach Boys put it, “I Get Around!!”. It’s all about gettin around. If you’re blind, simply put, you need to be the easiest date at the prom. It’s all about logistics. Getting groceries, getting to the doctor, getting the kids, etc. It’s about getting things done. Your support system is everything. Without it […]

Canned Extrovert

Canned Extrovert

I am a weird mix of introvert and extrovert. People who know me – friends or colleagues – would all call me a “flaming extrovert”. Generally this is true. However; in situations out in the world that I don’t have context for, or situations that are adverse to me seeing, I am a decided introvert. […]

Performing

Performing

I sing. Funny that a voice like a fog horn. A tuned fog horn of course. But still very loud and distinctive. I have done a number of shows over the years with lead roles and chorus roles, for amateur and professional companies. So I really can sing. I even do the national anthems from […]

In The Beginning

In The Beginning

I am starting this BLOG and Podcast to share my experience with blindness. I am legally blind and have been since birth. I have a congenital eye condition called Ocular Albinism. Many have been interested and inspired by my story over the years. So much so I considered writing a book to share my story…. In The Beginning […]

What Can You See?

What Can You See?

I get this question all the time. I appreciate the question as it demonstrates a person’s interest in understanding me and my vision but it is profoundly difficult to answer. Visual acuity or our perception of color is impacted by our mood our distractions and our experiences. Vision ultimately is a very individual and somewhat variable experience. What […]

My Greatest Gift

My Greatest Gift

I wanted to write a book about my experience with blindness except I couldn’t think of the punch line, the hook or the message. Honestly I am not the joke even though I have been accused of being the joke once or twice. There really isn’t anything profound as I believe that everyone is born […]

Bee Little

Bee Little

People generally have good intent and mean well.   We won’t talk about those rare few individuals that are totally mindlessly malicious.   Parents love to protect their children, friends love to protect their friends, and we like to protect ourselves.   We like to fit in.   Having a disability can leave you feeling like an alien.  The […]

Used Against Me

Used Against Me

A very good friend asked me recently if I was concerned with any of the Blog or Podcast content being used against me. My initial response was No.   But then I thought about it and yes I have no doubt this content will come back to haunt me at some point. Used Against Me Podcast […]

The Paradox of Blindness

The Paradox of Blindness

Being legally blind is a paradox.   You can, but you can’t!!   The real problem is its never consistent.   It all really depends on many factors.    For me light is a big one.  In some lighting conditions I can see very well and in others I can’t.  As a general rule dawn and dusk is when […]

Coming Out Blind

Coming Out Blind

For most of my life I have not lived openly with my blindness. I have hid it and rejoiced in its invisibility. The sad thing with most things you try to hide about yourself the only person I was fooling was myself….   It takes a lot of energy to appear sighted, you’re constantly acting and anticipating the […]

I am not a Victim

I am not a Victim

Society is very interesting. If you are disabled its O.K. to fail. Its O.K. to not have high standards or high expectations. Its O.K. to use your disability as an excuse. Society is used to telling people its O.K. you can’t do this or that. It’s O.K. because your disabled…. I Am Not a Victim Podcast What Society has […]

Change is Good

Change is Good

Professionally I help Information Technologies Service Delivery teams grow.     Teams like individuals get stuck in ruts focusing on the negative or failure and not focusing on success and building on that success to be able to do new and cool things.  When the focus is on the failure connections between team or family members are […]

Blindness Defined

Blindness Defined

I will point you at NOAH’s site to discover the definition of Ocular Albinism the congenital eye condition that I have.  For other definitions you’re on your own.  I don’t care. Blindness Defined Podcast Here is my definition of Blindness. Blindness is a logistics problem.   My experience of blindness is dynamic.   So when my capabilities […]

Driven To Achieve

Driven To Achieve

People look in awe at my career.   I am in the top 5% of wage earners in North America.   I’ve often had this monkey on my back about not having a degree.  A job coach once said to me.  Will the degree help you earn more money?  My answer has been no I already make […]

Blind Jokes

Blind Jokes

I love humor and more often than not I need to laugh at myself.    I’ve spent a lot of time thinking about the subject of blind jokes.  Especially in light of the movie Blindness, I know the move was controversial to some.   I actually read the book “Blindness” that the movie is based on.  I […]

You Can’t Do ThaT

You Can’t Do ThaT

People love to tell us what we can and can’t do.  In some ways unfortunately we are shaped by our environment and those around us.     The people in our lives have a strong influence on what we think of ourselves and what we hold true about our abilities.   Look at a marriage with an abusive […]

You Can’t Do ThaT II

You Can’t Do ThaT II

I love it.  You can’t do that!!  Why not? Because you’re blind!!! I get this often.  You’re not supposed to do that.  Here let me do that for you.  It’s amazing to me other people’s conception of your abilities.     I love blindness as a metaphor because blindness is used to describe so many “can’t do” […]

You’re Not Blind

You’re Not Blind

Historically people would believe I was blind because of the coke bottle bottom glasses I wore.   Yes the lenses were thick.    When high index lenses came out, which are very thin, then people didn’t know I am blind and most couldn’t guess.   Well there were a few.   That was in the days when I was […]

How I See: Context

How I See: Context

Context is everything to me. People that know me personally will laugh out loud at this as I love chaos and passion, sometimes confused with drama and reckless abandon.    I need context and structure.  I need routine guideposts in my life that I can count on to get through my day. I see in context, […]

In Your Eyes

In Your Eyes

I see the world and am provided rich experiences through the eyes of others.    I love people in general.  I believe everyone has something to teach and everyone provides a unique view of the world and the experiences in it. In Your Eye’s Podcast When I am out and about I love to go with […]

How I See: Introduction

How I See: Introduction

I have just completed a set of posts that describe how I see.   In the group of posts it is important to realize that my physical visual acuity is 20/200.  What you see at 200 feet I need to be at 20 feet to see the same thing.    Generally I function much higher generally around […]

How I See: Memory Maps

How I See: Memory Maps

I find memory mapping critical for me to see.    In a particular context for instance my house.    I memorize and map the environment.   I can draw you a detailed floor plan showing you where all the light switches and outlets are, the doors, the location of the furniture, the windows, whatever.    This is a multi […]

How I See: Closure

How I See: Closure

I’m not talking about the process you go through when you end a relationship and you get together that one last time to yell and scream and each other.   Saying all the nasty things you’ve stored up over the years. No I’m talking about closure referred to as Gestalt Laws of Perceptual Organization.    Basically our […]

Human Perception

Human Perception

I have been researching ways to describe scientifically the human envelope of perception.   I’ve given up.  I’ve looked in books on the internet talked to doctors etc.  No luck… On the earth in the universe we live in there are a range of signals out there some we are aware of and others we are […]

Public Perception

Public Perception

I’ve being pondering the issue of public perception of blind people.   I have often wondered why a blind person using a guide dog is perceived in a better light then a blind person using a white cane.   The answer embarrassingly enough is obvious.   Who would you feel better about a person with a well behaved […]

What is Normal?

What is Normal?

I work in the Information Technology industry and have designed and implemented a number of large systems supporting global requirements.    Each system is different.  Each system has its own unique way of being measured and behaving.    Each system was designed for a different set of business reasons in different market or industry segments.    Each system […]

Light

Light

People, myself included, have been trying to figure out what I can and can’t see. There is no constant answer, no definitive statement; it’s a paradox. I’ve come to terms with the mystery that on one day in certain conditions things are great and I can function well visually. On other days… notsomuch. One of […]

Why I’m Out

Why I’m Out

Why on earth do I identify openly as a blind person?   That according to most people who have shared their own fears with me is the worst thing ever.   When I came “Out” as a blind man, it was very difficult.   I had grown up believing that if I could hide my blindness that I […]

Growing Up Blind

Growing Up Blind

I read this little book. More of a pamphlet really on blind children and their development. I was going to the University of Alberta at the time, trying to study computer science. Oh Well. Had these great libraries I was curious so I looked. The book was very cool and described some behaviors that I […]

SNL

SNL

The folks at Saturday Night Live are stupid. Humor and comedy is generally best at someone else’s expense but. Generally there are limits of good taste. I think these limits were passed. I can sluff off a blind joke made to me privately or in public, to a point. There is a point where its […]

How Do I Know Its You?

How Do I Know Its You?

Do you really want to know how I identify people? Well, O.K. We’ll go through each one of the senses and I’ll let you know things that help me to know who you are. Smell. This is a big one. I remember how someone smells and have found people from the wafting of their perfume. […]

Reverse Prejudice

Reverse Prejudice

I hate sighted people. Well that’s not really true but occasionally I am very derogatory to sighted people in general. I have been known to say things like “sighted people all look alike” or “don’t trust a sighted person for directions”. But this is all in jest. Its like the good humored blind jokes I […]

I Hate Being Blind

I Hate Being Blind

There are days I just can’t take it anymore. Knowing how differently I view the world How different I think How different my experiences are. How different I am. I hate it. I want to belong I want to fit in I want occasionally to be invisible I want to be able to do the […]

What Makes It Work

What Makes It Work

I have had to find my own definition of who Kyle is and living with being blind. I couldn’t be a typical “man”. Male models don’t account for variance or difference or individuality. I couldn’t go and be the macho oil field rough neck drinking beer and chasing woman. Gross exaggeration my apologies but I […]

Disclosure

Disclosure

Disclosure of my disability has always been problematic. I’ve tried the extremes being blind or hiding my blindness and not trying to live blind and as always the truth lies in the middle. At one point I wouldn’t disclosing my blindness. A friend offered that people might think I’m lying about other things if I’m […]

The Blind Way

The Blind Way

Many people think I am inflexible. That its my way or the highway. That I am a hard nosed SOB. Its too funny I was talking with someone recently and they finally put it into stark contrast for me. Actually explaining it to them put it into stark contrast for me. The Blind Way Podcast […]

Vulnerability

Vulnerability

I was raised to be a fierce advocate. Brutally. I was taught to fight and taught to win. I was told you can’t trust people to come through for you, you cant rely on anyone but yourself. Be the little Red Hen and do it yourself. Vulnerability Podcast I love the movie the “5th Element” […]

You Can’t Do ThaT III

You Can’t Do ThaT III

Our families of birth where we grow up and who we choose to call our family have a big impact on us. In the past I’ve had to manage issues with my families by moving away from them. Far away. You Can’t Do ThaT III Podcast There are expectations of roles and responsibilities and legacy. […]

Definitive Disclosure

Definitive Disclosure

I’ve come to the conclusion that you might as well wear your disability out on your sleeve. Meaning just live it. Don’t try to hide it just put it out there. People are going to react to you anyway. No matter what you do people are going to reject and run if they are handicapped […]

Blind Man Crap!!!

Blind Man Crap!!!

People want to know why on earth I write about so many things that don’t have anything to do with blindness. Why do you talk about divorce and job hunting and work and social issues. I’ll tell you. I as a blind person perceive and see the world differently than people that fit into the […]

Blindness is Subject Forbidden

Blindness is Subject Forbidden

A friend of mine seen the blog in its early days and said you can’t write about that. A topic like blindness is forbidden. I understand. Society is so limited by herd mentality. You as an individual may know something or accept something that the group or the herd does not. Effectively you as an […]

Death of Vision

Death of Vision

Grief is a regular thing with disability. When your walking in the middle of the road, just like a grape you will get squished occasionally. Or end up like road kill rodent burgers. Enough morbidity. It is very difficult having “residual” vision. Your capabilities are dynamic and sometimes they change for the worse. I’ve never […]