Advocacy

Communication & Imagination

Communication & Imagination

  Living with Ocular Albinism I’ve always tried to define the word accommodation?   My definition for accommodation recently changed.   I’m an Information Technology professional; naturally my definition of accommodation has revolved around technology.   Here are the solutions I’ve found to the problems I face with Ocular Albinism.   Light Sensitivity My irises are translucent so […]

By January 23, 2015 Read More →
Support Systems

Support Systems

As the Beach Boys put it, “I Get Around!!”. It’s all about gettin around. If you’re blind, simply put, you need to be the easiest date at the prom. It’s all about logistics. Getting groceries, getting to the doctor, getting the kids, etc. It’s about getting things done. Your support system is everything. Without it […]

Cycling

Cycling

I have cycled all my life. Cycling has always been a reliable way for me to get from point A to point B. I would cycle to the swimming pool or my friends place etc. I am adept at commuting on a bicycle and riding across the city if necessary to get somewhere. I’ve only […]

Driving

Driving

Not being able to drive was the most painful thing in my life.   For the first time in my life there was no way to pretend to be like everyone else no more illusions.  I am legally blind.   I was definitely different.  It didn’t matter how high functioning I was or wasn’t or how well […]

Coming Out Blind

Coming Out Blind

For most of my life I have not lived openly with my blindness. I have hid it and rejoiced in its invisibility. The sad thing with most things you try to hide about yourself the only person I was fooling was myself….   It takes a lot of energy to appear sighted, you’re constantly acting and anticipating the […]

Downhill Skiing

Downhill Skiing

I love to downhill ski.   I grew up in Calgary forty five minutes from Banff and some of the best skiing in the world.     I learned to ski in Calgary at PaskaPoo renamed Canada Olympic Park for the 1988 Calgary Winter Olympics.   Anyway when I was learning to ski we called it Poo Glacier as […]

Support Systems

Support Systems

As the Beach Boys put it, “I Get Around!!”. It’s all about gettin around. If you’re blind, simply put, you need to be the easiest date at the prom. It’s all about logistics. Getting groceries, getting to the doctor, getting the kids, etc. It’s about getting things done. Your support system is everything. Without it […]

I Should Have Known

I Should Have Known

I connected with a cousin of mine the other day. During the conversation of catching up we touching on my disability. She knew I was blind, but not what that meant or what it was called. I should have known. I’ve spent so much time lately being angry and frustrated at my family of origin […]

What’s In a Doll

What’s In a Doll

  What wisdom can a toy doll impart on us? We either make our toys represent ourselves, making our toy look like us, or our toy becomes our confidant or our best friend. In either case we have the opportunity to project ourselves and reflect on our life through play. Play is a necessary for […]

Realizing My Potential

Realizing My Potential

Have you ever noticed how, depending on you take on things, God or the universe chooses to talk to us? Have you ever noticed how often we are given messages? There are countless songs poems stories etc about how we are spoken to. The subtle the sublime and sometimes the sledgehammer on our stubborn heads, […]

Cone of Silence

Cone of Silence

I’ve talked to a number of people recently and I’m shocked. I have been ignorant and naive. People with any disability, visible or not, disease, affliction whatever feel like they are not allowed to talk about their condition. I’ve been told by many not for profit organizations that their donors demand to be anonymous. The […]

Empathy

Empathy

Have you ever asked yourself why you seem to be more receptive to some and not so much to others? Have you ever wondered at work why if an idea came from one colleague it was received differently then if another colleague expressed the same idea? Do you notice that if something is not in […]

Teenage Blindness

Teenage Blindness

The teenage years for anyone are probably some of the hardest and delightful moments of ones life. Its the first time you ask yourself who am I? The first time you figure out what is important to you, the first time you begin to understand who and what you are and what you stand for. […]

Normal

Normal

None of us like to feel or admit we are different. I look at my choice of careers. I used to shun the musician, masseuse thing as it was stereotypically blind. I now am spending more time singing and want to learn the message trade. I chose a career in information technology “IT”. Why because […]

Making a Living

Making a Living

Its very difficult making a living as a blind person. The most stress I’ve ever had in my life was when I was married, for the first time, and I was the only bread winner. I couldn’t get my x-wife to work for nothing. Supporting four mouths was a ton of pressure. In the workplace […]

Angry Blindman

Angry Blindman

CNN has provided much inspiration for my writing recently. There was a headline recently about Obama in the context of the BIG oil spill. A lot of people want Obama to get mad and kick some butt. When your a member of a “group” of people be it a color creed or disability you are […]

Poverty, Disability

Poverty, Disability

I was hypothesizing about growing up in poverty, disabled, blind. I grew up in Canada. Generally the poverty levels here are better than in other parts of the world but indeed poverty exists here as well. I’ve done some reading and research and have had several conversations about poverty. I am no expert on poverty. […]

What is the Human Condition?

What is the Human Condition?

What is the human condition indeed? When you synthesize distill and peel back the layers of life what are you left with? Death. Life will ultimately lead to death. All life comes with the instinct to survive be it the individual, the colony, the species. You could take a step further back and ponder what […]

Activism vs Advocacy

Activism vs Advocacy

Duality, paradox, is how I view my experience with blindness. There are things I can do and can see in some contexts and there are many many things I can’t do or see no matter what. I was challenged in a discussion, am I an advocate,?“a person who speaks or writes in support or defense […]

Technical Accommodation

Technical Accommodation

I’m struggling with the issue of technical accommodation, who’s responsibility is it, who pays, and who gets to keep the gear?. As a disabled person there are pieces of technology that make many things in my day and my personal and professional life possible. I’m going to publish a picture of myself showing the technology […]

What Does a Blind Man Look Like

What Does a Blind Man Look Like

This is me. I’m six foot four inches tall, probably about three hundred pounds and blind. I’m told everyday that I don’t look blind. I’m really not what you’d expect too see when you see a blind person. What do you expect when you see a person of disability? What do you expect to see […]

Getting Out The Door

Getting Out The Door

You might not know it to look at me but I am utilizing six things to accommodate me and my disability. There are six things I use just to get out the door and walk down the street. Lets start at the top and work our way down. Tilley Hat Part of my disability is […]

Is Your Cowboy Hat Too Tight

Is Your Cowboy Hat Too Tight

I’ve been picking on Calgary in my writing recently, its hard returning home to find that home is no longer home and discover how much you’ve changed as well. I’m no longer a Calgarian but I am a Calgarian in the best sense of the word, I am friendly and helpful. There used to be […]

Guerrilla Job Hunting

Guerrilla Job Hunting

I still advocate the use of the job hunting system in the book “What Color is Your Parachute”. These days the job hunting market is tough, Guerrilla job hunting is the added approach the extra work you have to do to get the job, you have to be tenacious bordering on obnoxious. To start you […]

Finding Your Voice

Finding Your Voice

  I received an email yesterday from an old friend of mine. This friend is very important to me as they have waled with me through many valleys of death. They have shown me compassion and hope when there was no on e else there. Even took me for a burger in a red convertible […]

Disability Defined

Disability Defined

My disability has added a second disability, my back. I have a ruptured disk for whatever reason we, the doctors and I, have no clue what happened. The theory is that a cycling accident I had a number of years ago was the catalyst event. It really doesn’t matter, my back condition is painful, debilitatingly […]

Managing Your Disability

Managing Your Disability

Disability requires constant diligence, what’s working what’s not working, what’s changed, what can I do to manage my disability differently. It’s a discipline of constant diligence that will see you through. None of Us Wants be a Burden We all don’t want to be a burden on others. Having others take care of our basic […]

Throw Back

Throw Back

Recently I had the opportunity to work at a client who’s focus is the eradication of blindness. I had some misgivings going into the organization, “the blind man at the blind organization”. Initially the gig was a good fit the people were excellent the mission for the organization seemed sound and I had fun for […]